Mutanen da ke zaune tare da Lupus Suna da Aƙalla Manyan Gaba ɗaya Cutar ta shafa

A wani bincike na kasa da kasa na baya-bayan nan, Ƙungiyar Lupus ta Duniya ta gano cewa kashi 87% na masu binciken da ke zaune tare da lupus sun ruwaito cewa cutar ta shafi daya ko fiye da manyan gabobin ko tsarin gabobin. Sama da mutane 6,700 masu fama da cutar lupus ne suka halarci binciken daga kasashe sama da 100.

Lupus cuta ce mai saurin kamuwa da cuta wacce zata iya haifar da kumburi da zafi a kowane bangare na jiki inda tsarin garkuwar jiki, wanda yawanci ke yakar cututtuka, yana kai hari ga nama mai lafiya maimakon.

Kusan kashi uku cikin huɗu na masu amsa sun ba da rahoton gabobin da yawa sun yi tasiri, tare da matsakaita na gabobi uku abin ya shafa. Skin (60%) da kasusuwa (45%) sune mafi yawan gabobin da suka shafi lupus, ban da sauran gabobin da ke da tasiri da tsarin gabobin ciki har da koda (36%), GI / tsarin narkewa (34%), idanu (31). %) da tsarin juyayi na tsakiya (26%).

"Abin takaici, an gaya wa mutanen da ke zaune tare da lupus cewa 'ba su da lafiya,' lokacin da a zahiri suna fama da wata cuta da za ta iya kai hari ga kowace gaɓar jikinsu kuma ta haifar da alamu marasa adadi da sauran matsalolin lafiya," in ji Stevan W. Gibson, shugaba kuma Shugaba, Lupus Foundation of America wanda ke aiki a matsayin Sakatariyar Ƙungiyar Lupus ta Duniya. "Muhimmin aikin Ƙungiyar Lupus ta Duniya da membobinta na taimakawa wajen wayar da kan jama'a game da kalubalen da mutanen da ke fama da lupus ke fuskanta a kowace rana kuma suna ba da hankali ga buƙatar ƙarin tallafi a fadin duniya, ciki har da daga jama'a da shugabannin gwamnati don ƙara yawan kudade na bincike mai mahimmanci. , ilimi da ayyukan tallafi waɗanda ke taimakawa inganta rayuwar duk wanda cutar lupus ta shafa."

Daga cikin masu amsa binciken da ke ba da rahoton tasirin gabobin, sama da rabin (53%) an kwantar da su a asibiti saboda lalacewar gabobin da lupus ya haifar kuma 42% likita ya gaya musu cewa saboda lupus suna da lalacewar gabobi da ba za a iya jurewa ba.

Tasirin lupus akan jiki ya wuce alamun jiki. Yawancin masu amsawa (89%) sun ba da rahoton cewa lalacewar gabobin da ke da alaƙa da lupus ya haifar da aƙalla babban ƙalubale ga ingancin rayuwarsu, kamar:

Shiga cikin ayyukan zamantakewa ko na nishaɗi (59%)

Matsalolin lafiyar kwakwalwa (38%)

Rashin iya aiki / rashin aikin yi (33%)

• Rashin tsaro (33%)

Kalubalen motsi ko sufuri (33%)

"Yawancin duniya ba su da masaniya da lupus kuma ba sa fahimtar zafin da muke fama da shi akai-akai ko rashin tabbas na abin da gabobin jiki ko sashin jikin mu zai kai hari a gaba," in ji Juan Carlos Cahiz, Chipiona, Spain, wanda aka gano tare da lupus a cikin 2017. "Wadannan binciken binciken ya nuna mummunar tasirin lupus a rayuwarmu da kuma dalilin da ya sa dole ne a kara yin aiki don wayar da kan jama'a game da wannan cuta, da kuma ci gaba da bincike da kulawa."