Fiye da mutane dubu ɗaya da abin ya shafa ta hanyar rashin ƙarfi na gaba (FTD), mafi yawan lalata a ƙarƙashin 60, sun taru don haɗawa, koyo, da hulɗa tare da al'ummar da ta fahimci cutar a Ƙungiyar Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararru (AFTD) Taron, ranar Juma'a, 8 ga Afrilu.

Mutanen da aka gano tare da FTD, abokan kulawa, masu kulawa, masu bincike, ƙwararrun kiwon lafiya, da masana masana'antu sun halarci taron Ilimi na 2022, duka a Filin Jirgin Sama na BWI da ke kusa da Baltimore, da kuma kusan. Kusan mutane 200 ne suka halarci Baltimore don ƙwarewar taron mutum na farko tun daga 2019, yayin da fiye da masu rajista 1,000 daga ƙasashe 29 daban-daban suka shiga ta hanyar kai tsaye.

Ranar ta ƙunshi gabatarwar da ke mayar da hankali kan sababbin matakai a cikin bincike na FTD, bambancin kulawa da abokin tarayya na FTD, da harshe na lalata, wanda masana a cikin FTD / dementia filin suka gabatar. Dukansu masu halarta na cikin mutum da kama-da-wane sun sami damar shiga cikin tarukan ɓarkewar ma'amala waɗanda suka ɗauki zurfin nazari kan mahimman abubuwan tafiyar FTD.

Mutanen AFTD tare da FTD Advisory Council, ƙungiyar mutanen da ke zaune tare da FTD waɗanda ke taimakawa wajen sanar da aikin AFTD, sun raba ra'ayinsu game da rayuwa tare da cutar. Daga baya, mamba na Hukumar AFTD Rita Choula, MA, darektan kulawa a Cibiyar Harkokin Kasuwancin Jama'a ta AARP, ta gabatar da jawabin babban taron, inda ta raba tafiyar mahaifiyarta tare da FTD da kuma yadda danginta suka gudanar da kwarewa. Ms. Choula ta aike da kira ga daidaikun mutane da mutanen da FTD ta shafa da su “jajirce” wajen ba da shawarwarin kulawa, ga ‘yan uwansu da su kansu.

Wanda ya kafa AFTD Helen-Ann Comstock, Shugabar AFTD Susan LJ Dickinson, da shugaban hukumar AFTD David Pfeifer ne suka gabatar da jawabin rufe taron, inda suka yi tsokaci kan tarihin kungiyar yayin da AFTD ke gab da cika shekaru 20 da kafu.

Ƙarin jawabai da suka fito a taron na bana sun haɗa da memba na Majalisar Ba da Shawarar Likitoci ta AFTD Chiadi Onyike, MD, MHS; David Irwin, MD, babban mai bincike na Penn Digital Neuropathology Lab; Tania Gendron, PhD, na Mayo Clinic a Florida; Angela Taylor, babban darektan bincike da shawarwari a Lewy Body Dementia Association; da Laynie Dratch, ScM, CGC, na Cibiyar FTD ta Jami'ar Pennsylvania.

ABUBUWAN DA ZA KU GUDU DAGA WANNAN LABARI:

The day consisted of presentations focusing on the latest strides in FTD research, the diverse FTD care partner experience, and the language of dementia, presented by experts in the FTD/dementia field.
Later, AFTD Board member Rita Choula, MA, the director of caregiving at the AARP Public Policy Institute, delivered the conference’s keynote address, sharing her mother’s journey with FTD and how her family navigated the experience.
Fiye da mutane dubu ɗaya da abin ya shafa ta hanyar rashin ƙarfi na gaba (FTD), mafi yawan lalata a ƙarƙashin 60, sun taru don haɗawa, koyo, da hulɗa tare da al'ummar da ta fahimci cutar a Ƙungiyar Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararrun Ƙwararru (AFTD) Taron, ranar Juma'a, 8 ga Afrilu.